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World Fragile X Day
22 July
World Fragile X Day is 22 July. This day is celebrated in many countries around the world including Australia.
Since 2016 Fragile X Association of Australia has invited significant landmarks across Australia to illuminate “ORANGE” on this day, orange being the signature colour for Fragile X in Australia.
Fragile X syndrome is a genetic condition which is the leading cause of inherited intellectual disability. Thousands of families (around 90,000 Australians) are impacted by Fragile X in some way – as carriers of the gene mutation that causes Fragile X syndrome, or living with Fragile X syndrome. Fragile X conditions remain, unfortunately, frequently under-recognised and often misdiagnosed. Late diagnosis delays the opportunity to put in place the appropriate treatments and care which will secure the best life outcomes for those affected.
In supporting Light Up for Fragile X, regional and metropolitan communities are acknowledging the families and individuals who are living with Fragile X syndrome and actively raising public awareness of this disability.
#WorldFragileXDay
Old Treasury Building will be lit in orange for this event from sunrise to sunset.
